The charity is a company limited by guarantee and is governed by its Memorandum and Articles of Association incorporated 18 March 2010. It is registered as a charity with the Charity Commission.
The trustees have a duty to identify and review the risks to which the charity is exposed and to ensure appropriate controls are in place to provide reasonable assurance against fraud and error.
We give practical advice and support to families, providing financial help towards the high costs of hospital visits (e.g. parking cost, accommodation). We strive to provide children and their families with care and support both financial and emotional. In addition we arrange events, life enhancing experiences and activities for families to enjoy together.
Aims and activities
We now support families nationally as well as regionally. Giving them a proper support network with the knowledge and signposting for where to go for help, while making new friendships along the way. From funding to help with the high costs incurred through hospital visits, help with emotional support, life enhancing experiences, activities for families to enjoy together, grants for specialised equipment like wheel chairs and major buggies, time away for our families at our charity caravan for a much needed holiday, outdoor learning through our community allotment project, and very sadly for those times when building memories for children terminally ill. We signpost families to Dunstone Bennett through a family support worker, providing them with free psychotherapy, counselling, reiki, reflexology, Indian head, neck and shoulder massage.
Where your money comes from
Money is raised from sponsors, donations and other incomes from companies. To highlight this year, we received funds from monthly donations, independent sponsorships, golfing events, a large school, a large rural entertainment hosting company, local public houses, memories of a loved one, annual ball, a leading UK company in the mechanical & electrical building services, a television game show for the competitor, a breakfast TV mudda challenge, a lady shaving her hair off and a life challenge for a sponsored skydive.
How you’ve spent your money in the past year
Money has been spent on the family respite caravan, for family admissions at regional events, families attending raceway days out, 15 families attending a 4 day Christmas fantasy break at Butlin’s, family camping weekend, children’s fantasy ball, counselling and psychotherapy, Children’s allotment, emergency grants to help a family child, distributing 2 gifts for every charity registered child along with their siblings, family travel and subsistence to hospital, and gifts of love for most poorly children with family wishes. The charity funds, operations office with facilities for our support team and volunteers to provide services to our beneficiaries and organise activities. This year saw a high increase in insurance, and for professional services spent to provide the necessary governance needed to ensure our policies and procedures aligned to charity law.
Achievements and performance
Our achievements are to always be there for the children and their families when they need us most, offering support, sign posting, respite, emergency one off payments, and sadly when a charity child becomes deceased, the help with funeral costs. Having events from children’s fantasy ball, family camp, Hollowell Steam Ralley, and Christmas fantasy break for 15 families, where they get a greater chance to network and share their issues as well as a create memorable experience for everyone, increasing social acceptance. Rejuvenated allotment now provides children the chance to enjoy and see things grow, promoting outdoors learning. We signpost families to Dunstone Bennett through a family support worker, providing them with free psychotherapy, counselling, reiki, reflexology, Indian head, neck and shoulder massage. We have had an increase in large corporates wanting to offer Christmas gifts for the children, and for community support team days bringing valuable resource to the work we do, and as a result we have seen an increase in the charity’s exposure. Our policies and procedures have been completely rewritten and now provide all the governance for the volunteers, its trustees and most importantly for our families.
Plans for the future
We are evolving our charity with the board of trustees with a blend of skill sets to support our work. Our plan is to support more children, encourage outdoor learning, promote social acceptance through our family support network, and raise awareness of our activities with families that we can help. Help consider community projects like the cancer wards at Northampton & Nottingham Hospital, to provide improvements for the families during treatment or hospital equipment. The operations team are working closely with the board to ensure all activities, provide benefit to the families our charity was set up to support.